Discovering the future of women’s health care

In This Issue

Endometriosis Research Study Newsletter  |  Summer 2014

Juneau Biosciences, LLC  |  2749 E. Parleys Way, Suite 210  |  Salt Lake City, UT  84109                                                                   

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Mahatma Gandhi once said, “In a gentle way, you can shake the world.”

On March 13, 2014, thousands of women around the world and their loved ones were brought together by one thing: endometriosis. The Million Women March was organized to bring awareness to the importance and devastation of this disease. Marches took place in over twenty countries. On the National Mall in Washington, D.C., thousands braved a bone-chilling cold spell to speak, to listen, to celebrate, and to then to march. On foot and in wheelchair, women, men and children gently shook the grounds marching toward the Washington Monument.

Support for this ground-breaking movement was widespread.  Prominent physicians, scientists, and endometriosis surgeons described their efforts to improve knowledge and treatment of endometriosis. Leaders of national medical societies and endometriosis organizations discussed accomplishments and unmet needs. Government representatives related challenges and opportunities. And many marchers told their personal stories. These stories resonated with the participants, who had traveled similar roads.

Celebrities Sheryl Crow and Stephanie March were in attendance to promote endometriosis awareness. Stephanie March spoke eloquently about her personal journey with endometriosis, which motivated her to increase awareness for others. Sheryl Crow and her band were nothing less than heroic, performing in the face of a wind chill of 8 degrees. Without gloves!  The energized crowd danced and celebrated. Together with the Nezhat family, Ms March then led the marchers toward the Monument.

Three researchers from Juneau attended the March, Peeches Cederholm, Karen Miller, and Katie Cederholm. The endometriosis community was warm and welcoming. The Juneau participants were fully included as endosisters, and are proud of it! Every single person they met was fascinating. Though Juneau researchers know the tragedies caused by this disease, hearing face-to-face from so many women was deeply moving.

It was sad to share the heart-wrenching stories, but exciting to be among people with so many different roles and abilities working toward solutions. Juneau is honored to make its unique contribution in research and diagnosis. Others contribute in a vast number of ways, from talking openly to family members to running entire organizations devoted to endometriosis. Regardless of background, age, gender, or job, all came to help give a voice to women who for too long have not been heard. A loud, insistent voice was raised!

Their voices were heard and still are being heard. An unstoppable force has been set in motion! Women who have fought this disease in isolation no longer feel so alone. New connections and ideas are flying around the online community. Plans have already begun for next year’s March. There is truly power in numbers. When so many women are unafraid to speak up, to tell their stories, to expose their wounds, and to challenge medicine and society to do better, this disease can no longer be ignored.

We applaud the March participants all over the world, and support more activism! Stay involved in your support groups and online groups. Participate in other endometriosis events. Join the research study and share this opportunity to act with your friends.  Reach out to those who are ignorant, and enlighten them. Never, never stop talking about endometriosis! Remember that changes may appear small at first, but before you know it, they will be shaking the world.

Silently Shaking the Ground